Last week 7th
May was going to be a day of hell for me,
why because I was expecting a call from I thought finally an Asthma nurse,
possibly prompted by a spell in hospital as a result of a combined Asthma attack
and combined chest infection, not nice when you're struggling to throw up and
then get your breath and your fitting, etc
To cut a long story
short so I got not a qualified Asthma nurse, but an advanced Paramedic who
because she had personal experience of asthma this condition thought that she
had the experience as a qualified medic to deal with my review, sorry she had
no idea and referred me to a doctor. This is where the nightmare begins.
On the 8th of
May, I went over to the doctor and I was apprehensive enough because I also
have Complex PTSD and it scares the shit out of me when I have to see someone I
am not sure of, anyway I got in to see him and we went through the usual load
of claptrap and general lack of respect towards me as he was awful no respect
towards me because of my Autism and my Complex PTSD and when I mentioned I have
Ehlers Danlos Syndrome he looked at me as if I had two heads. He then
questioned my diagnosis of Asthma and this nearly erupted into a row, sorry but
not all people fit the classic signs of Asthma. I felt so raw when I came out
of the surgery that I feel that it has left me lacking in confidence in my doctor's
surgery, that I am using alternative and complementary therapies to help with a
complex situation, and I am not going back until the matter has been dealt
with.
The problem I and most
people have is that of trust, it stems from people in authority this could be people
like Police, Teachers, Parents, Doctors, Consultants, Nurses, and more, and
unfortunately, if you have been through physical and sexual abuse you find it
more and more difficult to deal with these people.
The other issue is
that I want my medical notes flagged for being Autistic and having Complex PTSD
as going into any medical place is a real problem for me and why should we have
to do this because there is a genuine lack of respect and this goes both ways
if they want us to respect them then they should respect us.
I also came out last
year as a Gay man and I am proud of that and so I had this changed on my
medical records so they could tick their diversity box, shame they couldn’t tick
their equality box, my advice now is to write down how you wanted to be treated
and hand this into each GP you have to see or consultant and it’s a sort of
passport because I have had enough of being treated like an idiot.
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